Normally I won't tell you my worries about the ins- and outs of my family. Private things should remain private. But now I'd wished having some more information on the following subject. My grandson is suffering juvenile dermatomyositis, a sort of rheumatism. It is very rare, one out of a million boys have this. Since june this year, his immune system got worse and worse. The specialists, some medical professors at the Acadamic Hospital in Leuven, Belgium, can't set the diagnosis right and prescribed a medical treatment with medicines like Prednison and more.
We all know what Prednison can do to adults, not to speak of small children (he is 4 years and a couple of months). But there is no alternative. The desease is so uncommon that the pharmaceutical industry doesn't have an answer - the costs of research and development, you know -, therefore they experiment with different doses. Nothing seems to really help him. His internal organs, liver and kidneys, deteriorate. From a very lively todler he became a dull, stressed and insecure little guy. At the bottom you see two pictures, one taken in November 2010 and one very recently.
My son and I are looking at the Internet for more info on this subject, but mostly the websites aren't that good, giving us the idea of quackery and urban legends. Do you know, having heard, have somebody in the family or anything seriously relating to this subject, please PM me.
After: (for fun he is wearing his father's glasses)
With regards and you all a very fine Christmas,